Thursday, June 17, 2010

The Normal and Not-So Normal Life

I keep thinking I should write something profound, eloquent and poetic about these past few days. Or maybe it should be a blistering rant about the unfairness of everything. But I can't seem to find the right rhythm. We're staring our philosophies in the face. Roger says, "Well if it's metastasized, I'm toast." Yes, that's the horrible truth. We've read the survival statistics for that scenario and they are absolutely grim. We won't know for a while yet what the status is on that large mass because the gastroenterologist and the surgeon are concentrating on determining how to treat the smaller lesion. Even though it may or may not be cancerous (the biopsy on that one has been sent to another lab for a second opinion), it still needs to be removed. If it's not malignant can it be taken out piecemeal during additional colonoscopies? Should it be removed surgically? These are the questions.

The surgeon is a wonderful, avuncular older man. If he wasn't a surgeon he'd make a very good soft-spoken pediatrician. Roger said he felt like a child, when this tall man raised the examining table and then gently bent to listen to his heart. The surgeon explained how he would perform the surgery, recommending a full opening rather than the more popular smaller incision for laparoscopy. He told us that patients come in after reading the internet, and ask for laparscopic surgery. He doesn't think that's the best way to go in these situations. We trust his experience on this. Yes, of course, he should open Roger up "larger than his hand" and do the work that needs to be done. Our mantra is: Fix This Now.
On trying to maintain life here in the normal way: Roger moved the bird feeder Thursday afternoon. We've been chasing the squirrels for a few days, after they figured out how to leap from the rocks to just above the squirrel-proof baffle. Hah, it is truly baffling how they figure that stuff out with their little rodent brains. The little blind and lame squirrel (pictured above) stopped showing up two days ago. He hadn't been looking very well lately. My twin brother said I should call Wildlife Rehabilitation and Release to pick the little fellow up. I said, "No I don't think so. Why deprive some coyote its natural meal?" Poor little thing. He was limping all the time, a real wreck of a creature. I often put out secret little stashes for him, hoping to cure him with extra food. Sometimes he even found them, and I would clap and sing.
The plan for now: The next appointment with the surgeon is Tuesday. Supposedly the pathology report will be back from the lab at the University of Washington. Then there really will be a plan on how to restore Roger back to his good health.

Stupid colon. Stupid cancer. Stupid labs. Stupid squirrel.

28 comments:

  1. This all is so frightening and I think by writing it as you did, making it part of the whole piece of life, you did make it eloquent. It is what it is for us all but just a question of timing and what. Sometimes we face such things and then it's all okay and we go on but we know someday we won't go on. I hope that in this case, it will be one of the former types and you can both go through what you must and put this behind you and enjoy your new home for many years to come.

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  2. As someone who knows far too much about stupid colons and stupid cancer, my thoughts are with you both--and my faith in a positive outcome.

    There's so much that's difficult in all of this, but I'm glad to know Roger has a kind and good surgeon who is carefully weighing the options.

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  3. Only the best of thoughts for both of you.

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  4. Normal and not-so-normal. How well I understand. I could say more (much more) on this topic. However, here's the main point. Once you find yourself in this kind of situation, the not-so-normal becomes the normal pretty quickly. We always found it was like riding waves. You see one ahead and it looks big, but by the time you get on top, it's not so big after all. You see another ahead and maybe it's even bigger, but you go on. After awhile, it all starts to feel pretty normal - these waves and the paddling in between. That's not to say this isn't hard stuff, because it is, but it's important to find and maintain the normal as much as possible so that you get the rest and recovery time that you need - both of you - as you go along.
    Sounds like you've got a good surgeon. When it comes to this type of situation, it's sometimes nice to have an older surgeon who has seen just about everything.
    Best wishes in the days ahead. Find and do the things you love.

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  5. Btw, I almost forgot. Wonderful photos of the dragonflies! You're really getting this insect photography down!

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  6. Bev really said it all quite well. We do adjust to the not so normal and go on. We humans are amazingly resilient.
    Liking your surgeon is vital and he sounds wonderful. I have to agree with his approach.
    Hoping for good results and know you will feel better when action is actually taken to get rid of this invader and can concentrate on being well.

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  7. Yes, it is STUPID, STUPID, STUPID. And it's so not fair. I'm screaming a blistering rant here on your behalf.

    I'm glad you agree with your surgeon. In cases like these it's always better to forego the laparoscopic surgery and take a really good look and feel inside the patient.

    Both of you are much on my mind as I go about the days.

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  8. Tears and more tears on your behalf. Why can't love cure cancer?

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  9. I cannot summon any words more encouraging or positive than what has already been said so I will just add my silent thoughts for good news and the belief that we are all stronger than we know.

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  10. ((((( roger )))))
    ((((( robin )))))

    your surgeon sounds just excellent. not merely technically competent, but caring and respectful. straightforward and kind. he won't bullshit you or bully you.

    also agree with bev's wise words.

    xoxoxo

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  11. I'm sorry but the pathologist report is taking much too long. I really can't see any good reason for that. Obviously you need to know.

    Anyway, hang in there.

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  12. I don't know what else to say that someone hasn't already said. I'm sorry and thinking of you.

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  13. I love you Rodger

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  14. Hoping for a good report and I think you have a good surgeon there - a trustworthy man.

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  15. For two days now we've been in a sort-of shock at the news. This isn't about us, but we've got to tell you how frightened and upset we are about it, for you, the future. We've come to see you a fellow sojourners, kindred spirits, friends, and we 'love' you, sharing the truth, and this sweet earth with you. We are holding you in our hearts and directing energy to healing and life. peace, MandT

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  16. Sending love one day at time until Tuesday and beyond.

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  17. My heart aches and my thoughts are with you both as you face down this latest challenge, Robert and Robin. All my best wishes to you.
    -Wren

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  18. i have great confidence in UW as you might recall. glad they are doing a 2nd opinion on the path report. here's hoping the 2nd path report will confirm the benign status and that the removal of that polyp can be done without too much invasion. waiting for the next update - positive and hopeful.

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  19. We hold our collective breaths and wait.
    Thinking of you both.

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  20. I'm just overwhelmed and don't know what to say. Please know that there is a reservoir full of love and concern for both of you from Johnny and me. We are keeping a kind of internal vigil with you, waiting for good news.

    We love you, Robin and Roger.

    Vicky

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  21. lovely photos of your Meadow Hawk?

    I am so sorry you are having to go through this. I know you are getting good care. Take care of each other. much love your way

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  22. Hey Roger----at karmanot@gmail.com
    Michael, Trace and Bodhi-dog Browne

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  23. I send my love to you both through these crazy internets. I feel certain that this surgeon will do his damndest, and if good thoughts and admiration are healers, Roger, you should be well in no time.
    XOXOXO
    YT

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  24. We are continuing to direct our thoughts your way; picture Mr. Perils marching and playing in a joyous aprade, and it might cheer you.

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  25. Keeping good thoughts for you and especially for Roger. I like a surgeon who still prefers doing open procedures; cute little scars are for sissies, and doing surgery through a keyhole is just dumb.

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  26. I thought I left a comment the other day, but it's not showing up now. I was blasting the "stupid" and, as bev said, reminding you to embrace the people and things you love.

    At any rate . . . Happy Father's Day, Roger!

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  27. I hope the pathologist report comes back with good news. My thoughts are with you both.

    When I first looked at the squirrel picture, I wondered if you had different looking squirrels there. He doesn't look like the squirrels I normally see. After reading about him, I can understand. Perhaps, he's already coyote fuel, if he hasn't been seen for a couple days.

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  28. Nickie agrees: Pathology report is taking too long. Whaddup with that?

    Bev's description of the new normal is right on the money. Keep your gaze out to sea, watch for the next swell, or wave, and ride right through it. Up and over.

    Curious about that squirrel...I wouldn't attempt to pick one up (rabies?). Perhaps he has taken his final turn and provided nourishment for another.

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